By-election Candidate Packages Available

For more information,

click here

A Moose Jaw family was told many years ago 'your child has SMA,' and that forever changed the way the Taylor family would live their lives. 33923061 259024714835657 2875097188646518784 nThe Taylor family live in Moose Jaw and have been receiving support from Moose Jaw residents and beyond after hearing Shailynn's story.

Shailynn Taylor, who is from Moose Jaw but now lives in Calgary, was diagnosed with Spinal Muscular Atrophy(SMA) at a mere age of 18 months. Following the earth-shattering news, her parents were also told that she would only live to about 13 years old. 

She is now 22 years old. However, this condition is quickly taking a toll on her health. Taylor explained that because of SMA she is no longer able to do many things that people without it do each and every day.

"I've lost the ability to stand, to walk, I'm struggling with the ability to swallow currently. Other abilities that will be lost (are) breathing on my own, eating on my own and feeding myself," explained Taylor. 

She noted that since she can remember the people around her have been doing everything they possibly can to alleviate some of the discomfort or to hopefully find a cure. 

"I'm super lucky, my parents and the community of Moose Jaw tried every possible therapy and treatment that they could do in Moose Jaw for me. From riding horses, to swimming, to weekly massages. The community has tried everything to keep me strong and it truly has kept me strong. Now more than ever access to treatment is important to me."

Unfortunately for many years there was no treatment available to Canadians suffering from SMA. However, just over a year ago Taylor was surprised with the life-changing news that Spinraza was approved for people living in Canada. Spinraza is the only SMA specific treatment and comes at a high cost that isn't covered by life insurance or by the government.

34501215 10155382576006105 5485538526873255936 nShailynn Taylor(R) with a friend who also has SMA.She quickly found out after becoming an advocate for people with SMA and fighting for necessary medication and treatment, that in the past parents we told to "just take their babies home and love them" after being told their child was diagnosed with it. 

Despite this seeming like an uphill battle, Taylor is determined to make Spinraza available to everyone who needs it one day and has goals for her own health journey as well - one of which includes being able to transfer herself, which would mean regaining strength in her upper body.

"I want arm strength to cook and clean, possibly have kids. Right now a day at an office job physically exhausts me; to have any kind of physical strength would be incredible for me and the stamina to get through to carry a more productive life is really what I'm hoping for."

But don't let her humble personality fool you; this young woman is involved in many things despite her medical situation. She is currently finishing school with the hopes of having a degree in the near future, she is spending the summer working as a probation officer, Taylor currently sits on a board created by a family who lost their own child to SMA, and she also provides support to other families who hear the same fate for their young child. 

Among the many roles she currently has, she also speaks at various events about her condition and the importance for all families to have access to treatment. She has made presentations to the government and has also been a special guest and guest speaker at local ceremonies and fundraisers in Moose Jaw.  

Recently, there's a been a tidal wave of support for this young woman. Her friends and family have created an army of volunteers and people who want Taylor get the treatment she needs. And finally on Monday this week, her mother and father heard the news that they've spent years praying for, and Taylor will be receiving a does of Sprinraza from SMA 360. 

There's been an active go fund me page that's been collecting donations for the past few weeks, which is the main reason why she can now get the treatment she's been longing for. But it doesn't stop here. Her family and friends also have a goal of raising $200,000 to cover her medical costs. 

With such a lofty goal, there have been multiple fundraisers, events, and initiatives created, all of which can be found on the 'Hope For Shailynn Taylor' Facebook page. 

Taylor said she can't believe the support and love she's been given by Moose Jaw residents and can't wait to be in the Friendly City to thank everyone personally. 


More Local News

New Moose Javian Barber Giving Back at Riverside Mission

Jason Gauthier, Barber, and Owner of Straight Edge Barber and Shave Parlour here in Moose Jaw moved to the Friendly City at the end of July. Gauthier has an interesting past and all of that has…

'Yogi' Huyghebaert Remembered and Honoured at 15 Wing (VIDEO)

A pilot, a commanding officer, a politician, a family man, and a friend. Delwood Frederick "Yogi" Huyghebaert was honoured at a celebration of life held at 15 Wing Monday afternoon. It was a short…

New Governance Bylaw Ordered for DFFH Board

A dark cloud remains over the Downtown Facility and Fieldhouse Board as a third special investigation meeting was held with some members of city council Monday afternoon. All meetings are to be…

DFFH Still Looking for One More Member

The controversy surrounding the special investigation aside, the Downtown Facility and Fieldhouse board are struggling to keep all of their seats filled. Earlier this year, a call for nominations for…

Combine Fire Destroys Machinery

Farmers are being reminded to prepare for the worst after a combine fire this weekend. During the extreme heat on Saturday that saw many areas pass the 40-degree mark, a combine working a field just…

Early Morning Fire Claims House on West Side

It was a sad and early start for the Moose Jaw Fire Department. First responders got the call around 1:30 am on Monday morning to a home on the 900 block of Ominica Street West for a report of a…

Devastation Rings Through WDM After Bell Is Stolen From Train

Familiar chimes might never be heard again at the WDM. For the past one to two years, the Shortline 101 has been the main focus at the Western Development in Moose Jaw, as staff and volunteers spent…

Japanese Students Visit Sask Thanks to Former Moose Javian

Arron Dobrescu was born and raised in Moose Jaw; however, he moved to Japan 15 years ago to build schools to teach English at, and after continuously expanding over the years, he now has over 900…

Roadside Saliva Test Device Awaits Approval

As we draw closer to the legalization of marijuana, the government is starting to close the gap on enforcing the new impaired driving laws. Upon receiving advice from an independent committee…

Provincial Unemployment Well Above Average

Job loss continues to plague Saskatchewan. There are 12,300 fewer jobs in the province than there were in July, 7000 of which were full time, according to a July Labour Report from Statistics Canada.… is Moose Jaw's only source for community news and information such as weather and classifieds.

Search the Biz Guide